tag:blogger.com,1999:blog-8996414747526275896.post4918424666261220755..comments2026-05-31T01:04:29.486-07:00Anonymoushttp://www.blogger.com/profile/10320386999214591373[email protected]Blogger2125tag:blogger.com,1999:blog-8996414747526275896.post-12386979709472890582026-05-31T10:56:18.039-07:002026-05-31T10:56:18.039-07:00I&#39;m so sorry you have to go through this.<br /><br />Our experience with sclerotherapy was definitely a mixed bag: it did work after 4 treatments and baby&#39;s airway is ok now. We didn&#39;t have to do a trach. But we did have some significant side effects: the droopy eye is cosmetic but still hasn&#39;t resolved (it&#39;s called Horner Syndrome and is caused by damage to one of his cranial nerves). The doctors tell us there&#39;s a simple outpatient procedure to correct it, but we haven&#39;t explored that yet. Maybe closer to kindergarten. <br /><br />The most devastating thing was that the last sclerotherapy stunned more of his cranial nerves, causing a facial droop and affecting his swallow. He was tube fed for 3-4 months after that. Now he is 13 months and eating food and doing normal baby things, but... We were not prepared for the side effects. Our doctor used alcohol as the sclerosing agent.<br /><br />Looking back, I think we made the right decisions along the way, but I doubt we would have treated his LM if it wasn&#39;t causing breathing difficulty. <br /><br />Best wishes to you and your little one. Feel free to contact me again if you like. <br />Anonymoushttps://www.blogger.com/profile/10320386999214591373[email protected]tag:blogger.com,1999:blog-8996414747526275896.post-88094226519779691942026-05-31T14:18:42.350-07:002026-05-31T14:18:42.350-07:00I just scheduled my 1 year old daughters sclerotherapy treatment for June. She was born with a LM on her neck. No airway blockage but she has a combo of micro and macro in the area. I am so worried... We were going to undergo this treatment during her 2nd month of birth but kept hesitating since she has been great and the cyst has not budged at all ( so lucky). Now she is 1 year and our pediatrician thinks its time. We are having treatments with Dr Stanley at the Los Angeles Childrens Hospital. I want a sign that Im doing the right thing. I dont want to make the wrong decision. this is really hard. I am so very sorry what you went through. I am just hoping to God that the sclerotherapy will be her friend not an enemy. Is there permanent damage on your little ones eye area? Please, if you can give me any info that would help. Thanks so much Anonymous[email protected]